Home from GOSH. They are concerned that Rosie isn’t growing due to her heart working harder constantly (effectively as if she were running), resulting in her burning off all calories consumed. They are keen to fatten Rosie up so she will be fitted with an NG feeding tube through her nose at Broomfield and we will need to stay in for a day or so to learn how to use it.
Now that Rosie is on the urgent transplant list they have said that we should expect a call anytime so it is important that we keep her as fit and well as possible in preparation for receiving her gift.
Another rollercoaster of a day!
Thank you all for your love, support and prayers. Lots of love x