Rosie’s Gallery

Look Who is Awake

A very drowsy Rosie came round from her induced coma and the first thing she wanted was a little drink. Great to have her back!

Rosie and her Teddy Bear

One of the cutest versions of this song that you will surely ever see, the words seem so poignant now considering everything Rosie is going through.

Two little dickie birds

Rosie added a little twist to one of her favourite songs calling the dickie birds Rita and Paul after her Nannie and Grandad.

The Berlin Heart
The Berlin Heart device is used in children whose hearts are no longer strong enough to pump enough blood around their bodies. There are many different types of conditions which can cause this need for support such as a weak heart muscle (cardiomyopathy) or an infected heart muscle (myocarditis).
The device is used to allow time for them to reach transplant or in a small percentage of children, to recover.

Ask The Question

In November a group of people all gathered in Battersea Park to encourage people to talk about Organ Donation. They have, will you? Not on the register? Sign up today!

Supporting patients with Cardiomyopathy

The first of two informative videos created by Cardiomyopathy UK designed to help GP’s and Nurses support patients with cardiomyopathy.

Recognising symptoms of cardiomyopathy

The second of two informative videos created by Cardiomyopathy UK designed to help GP’s and Nurses support patients with cardiomyopathy.

Rosie’s Photos

Look who popped in to see Rosie on Bear Ward

From cardiac arrest to sitting up late and eating pizza with Daddy in just 62 hours.

The lovely staff at GOSH found Rosie her favourite to watch on a DVD player in an attempt to cheer her up as she recovered from having her Berlin Heart fitted.

Rosie taking a sip of water on Bear Ward before she was fitted with her Berlin Heart.

Rosie looking clearly unhappy about having her NG tube fitted.

Please consider organ donation for yourself and your family (have the discussion) if you were in our position would you accept an organ? If yes you should be willing to donate. https://www.organdonation.nhs.uk/register-to-donate/

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