We have been very busy lately so an update is long overdue.

Rosie has settled into school well, we still have tears but not as many as when she first started. She is making friends, enjoying the soft play and the computer.

Mummy and Daddy spent an afternoon having tea with the Queen thanks to Cardiomyopathy UK. It was a real once in a lifetime opportunity to see inside the palace, enjoy some scrumptious cakes in the Queen’s garden whilst listening to her amazing band and get to see members of the royal family up close. We also got to meet the amazing Anna Bates who set up the incredible Believe charity to raise awareness of organ donation and are excited to explore how we can work with Anna in the future.


The Football Fun Day was a huge success. Dan Franklin did an amazing job in organising a fantastic event for us. It was so lovely to see so many old faces and meet lots of new ones. Thank you to the footballers, their supporters and friends and family who made the day so special. We raised an amazing £6k, the cost of the three week intensive rehabilitation programme Rosie has just started.

Rosie is one week in to a three week intensive rehabilitation programme with world class therapists from California, USA. We were incredibly lucky to get a space due to a cancellation. Every day for three weeks, Rosie is being worked to the point of exhaustion. By the end of each day her muscles are so fatigued, as is Rosie. They are working hard to strengthen Rosie’s core. She has also tried a walking frame and we are excited to see the results at the end of the three weeks.


Finally, last night saw almost 100 people attend a quiz night to raise funds for Rosie, kindly organised by Nannie Rita. We had some brilliant raffle prizes, people gave generously and had lots of fun. The evening raised a fantastic £1,142 to be added to Rosie’s therapy pot.

The money raised, in addition to paying for private physiotherapy, will enable us to buy Rosie a walker, therapy bench and other equipment that will help with her rehabilitation.

So, lots going on as always!

Thank you all for your continued love and support.

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