A summer of fun, now back to school…
This time last year we were preparing to leave GOSH and spend four months at Tadworth for intensive neuro rehabilitation. What a difference a year makes.
This year we have had a wonderful summer, making memories and spending quality family time together.
We had a great week at Hopton, Norfolk. We managed two days on the beach, swam, played crazy golf, had some fun day trips and really enjoyed the evening entertainment. Rosie absolutely loved spending time with her siblings, who have the ability to make her smile like nobody else. She really enjoyed the disco in the evenings, liked seeing the Seaside Squad perform and sat transfixed throughout the pantomime one evening.
The rest of the summer holidays were spent working hard and playing hard. Rosie had lots of private Physio appointments and continues to make good progress. She is getting stronger all the time and sat unaided for twelve seconds recently, a new record.
Day trips included going to the park, the farm, getting lost in a giant maize maze and meeting Chase and Marshall from Paw Patrol at Marsh Farm.
We also squeezed in a trip to GOSH for Rosie’s annual review. One year post transplant and we were delighted to learn that ‘Rosie’s heart is working perfectly’. On the anniversary of her transplant, we went to church and lit a candle to remember Rosie’s donor. We will always remember the little hero who saved Rosie’s life and their selfless, courageous family. We think of them often and will be forever thankful.
Finally, Rosie has been accepted by a great charity called Just4children. Using their charity number, we can now fundraise for Rosie’s Rehabilitation via a JustGiving page, which means we can claim gift aid on donations. It also means we can approach companies for corporate sponsorship and have a charity number that Rosie’s supporters can use to fundraise should any of you feel like jumping out of a plane or running a marathon for Rosie!
Thank you all for your continued love and support xxx